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Patients with Chronic Kidney Disease and Advance Health Care Directive Registration

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

Abstract

Advance healthcare directives planning entails the development of an understanding, reflection and communication process among patients, family members and healthcare team to accurately clarify patients’ preferences and identify surrogates, especially in end-of-life scenarios. The purpose of this study was to analyse the perceptions of patients with chronic kidney disease undergoing haemodialysis at Hospital Abraham Godoy Peña de Lautaro regarding the intention to register their advance healthcare directive. A phenomenological approach was applied to understand the meaning of the experiences of the subjects involved. Theoretical sampling was used, and 14 semi-structured interviews were conducted. Data were processed using thematic analysis. Patients with stage 5 chronic kidney disease undergoing haemodialysis were aware of the importance of advance healthcare directive registration; however, the registration process and should be guided by values-based education techniques. Interviewees prefer therapies aligned with their lifestyles, family impact, psychological comfort, and inclusion, rather than focusing solely on clinical results.

Original languageEnglish
Title of host publicationEmerging Trends in Information Systems and Technologies - WorldCIST 2025. Volume 1
EditorsAlvaro Rocha, Hojjat Adeli, Aneta Poniszewska-Maranda, Fernando Moreira, Isaias Bianchi
PublisherSpringer Science and Business Media Deutschland GmbH
Pages377-388
Number of pages12
ISBN (Print)9783031971181
DOIs
StatePublished - 2026
Event13th World Conference on Information Systems and Technologies, WorldCIST 2025 - Florianopolis, Brazil
Duration: 15 Apr 202517 Apr 2025

Publication series

NameLecture Notes in Networks and Systems
Volume1514 LNNS
ISSN (Print)2367-3370
ISSN (Electronic)2367-3389

Conference

Conference13th World Conference on Information Systems and Technologies, WorldCIST 2025
Country/TerritoryBrazil
CityFlorianopolis
Period15/04/2517/04/25

Keywords

  • Advance health care directive
  • Atlas.ti
  • Bioethics
  • Haemodialysis
  • Qualitative analysis

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